Wednesday, March 3, 2010


I've been a bit slack with the blog updates I know, but its a good thing really.
The liver tests were improved on Monday so we went ahead with chemo. It makes me feel very washed out, and gives me a feeling of a hangover for most of the week, but I can still eat pretty normally, and still no puking (Whoop whoop).
I am on so many drugs, and also ginger drinks, and acupuncture I really have little idea as to what works the best.... so I just take it all!
The other reason I haven't been writing much is because I don't really know what to write on here. Its not a diary, so hopefully theres not too much airy fairy crap, or deepest darkest thoughts (although there really aren't very many of those at all!) so really right now its just the basics. And when things are into a routine, there isn't a lot to say. Tomorrow I am half way through my radiation/chemo. Radiation Treatment 14 out of 28.
The radiation is really very easy. I turn up, lie on the table, get laser measured up, pushed and pulled into the right spot and then zapped (which I can't feel) for about 10 minutes. The hardest thing is trying to get my bladder (yup more bladder talk people) appropriately full. It helps to push the small bowel out of the way so that the bowel gets less radiation. When I have an early morning appointment it means setting an alarm 2 hours earlier to stat drinking fluid. I have to down about 1.5L over 2 hours to get a comfortable fill. On Monday, I got it wrong! It was a chemo day, so they give you lots of intravenous fluids and medicines to encourage you to pee. I got to radiation and was quite uncomfortable. And when I say quite, I actually mean really uncomfortable. I was in a cold sweat, couldn't breathe properly and thought I was going to loose it (literally!). But I made it through and (because they make you measure your pee volumes on a chemo day) I now know (and so will you....) that I have a bladder capacity of approx 950mLs! ouch.
The only other thing that is a bit weird with all the treatments is running into other people. Some of the young children have to have a general anesthetic for their radiation, so I see the anesthetists quite often. There in all my hospital gown glory. I don't really mind it, it just feels weird.
Again we have been so blessed by the support and care from our friends and family. We so appreciate every message, every coffee, every ride to the hospital, every meal and every visit. Rob has gone on a work conference for a few days and Mum is here with me. I'm loving having her here with me and feel quite pampered.
So a little bit nauseated, a bit more tired, but definitely getting there. Bring on the second half!

1 comment:

  1. Hey Niece,

    Half way thru, thank goodness. And still no puking. Nausea is bad enough for anyone with McCann genes who can get motion sickness by staring at their bus ticket....

    So you wrote "yup more bladder talk people" and I thought fair enough, it's all part of the treatment and at least she's not chanenneling Grandma's bowel movelemt conversation. Uh huh. And then you hit me with "It helps to push the small bowel out of the way".....

    (Maybe "hit me with" was not the best image I could come up with.)

    Hang in, and counting down the days till treatment ends.