So I am well into week two of this whole experience, and it's not really anything like I thought it would be.
Monday is my chemotherapy day. I arrive about 7.30, go through about 8 and then get started.
IV fluids, anti nausea drugs, then the chemo.
I always thought you would start puking when the chemo went in. you know, all sitting around puking together. But its actually a delayed thing. Now I have been lucky, no puking at all. Close a few times, but no puking.
Last week the nausea lasted 4-5 days. Just background nausea, like a hangover. I have 5 different drugs I take each day for nausea and I really do feel like a pharmacy.
I have to carry around a lunch box full of drugs with me everywhere I go just incase I need one of the many I have. Given that I know what all the drugs are for, and what all their names are, and how often to take them I have no idea how someone without a medical degree can keep up! I even have to have an application on my iphone to tell me when things are due. I just can't remember what I have taken each day and when!
I've even gone down the alternative medicine pathway for some things. I am giving acupuncture a go, and am wearing acupressure bands during the day. (I must admit, I did make sure there was scientific evidence behind it first - once a geek, always a geek).
Rob went away for the weekend, and I missed him a lot, but it was good for him to have a break and it gave me the opportunity to have some girl time with my Mum and Aunty Roisin. It was a pretty quiet weekend, partly because I managed to become a difficult patient (no surprises there really) and get myself a fever. Fever and chemotherapy don't really go so well. After 24 hours of regular paracetamol and keeping up with fluids it was still there, so then we started antibiotics. Which of course have upset my guts. Great. But at least the fever is gone.
When we turned up for Chemo on Monday I got the added complication that my liver function tests are becoming abnormal. And of course we have no idea why. When you are taking 10 different medications a day, are having chemo, have recently been through 3 anaesthetics, a cycle of IVF and had a fever its anyones guess. So now we are on official liver watch.
I'll get another swag of blood tests done tomorrow so that we have a better idea. Keep taking the antibiotics (caus it seems to have stopped the fever), stop taking the paracetamol and wait and see.
Each day I just have to take one at time at the moment. Try and be the patient and not the doctor and have a little faith (make that a lot) in other people.